January 12, 2009

Update

So, I took Dylan to the Dr., explained what I was seeing, and the Dr. could have as well laughed in my face.

He ordered a urinalysis and ordered blood to be drawn, but began to tell me that maybe if I limited Dylan's water intake at night, he would get better sleep (He wouldn't be going to the bathroom so much in the night). I explained that he had a never-ending thirst at night, and that's why he drank so much.

...so then, He told me to push fluids in the daytime so he wouldn't be so thirsty at night...

Um...hello...am I the only one that isn't getting it???

The doctor also said he saw no need for concern (not like I'm asking for anything to be wrong), and that he could give Dylan a medicine to help him so he wouldn't have to urinate so much in the night...

I said, thanks, but no thanks.

He is 8 years old, and he is on Concerta (ADHD), Buspropian (Anxiety), Trazadone (to sleep because his High ADHD dose keeps him awake at night), and Clonidine (Because the trazadone doesn't work alone to put him to sleep), and now this Dr. thinks he should be put on Amatriptoline (?) so he won't get up to go to the bathroom at night.

Does anyone else see a problem with that or is it just me??? If I'm off my rocker because I think he shouldn't be on that much medicine, please correct me...I'm not getting it.

He's been in the special Education (Emotional Behaviorally Disturbed) room all year because he needs the smaller crowds, and the teachers say he is doing good now (not punching or pushing kids, not threatening to blow up the school, not throwing chairs at teachers, etc.)...BUT

...he won't interact with his peers...he has too much anxiety around other kids, so he just hangs out with adults-one-on-one daily...

I think I feel a deliverance coming on here. I pray for a deliverance. I need a deliverance. My heart cries for answers and for God to reach in and fix everything in his life. Have I been hanging on too tight, am I not loving enough, do I need to pray more; if I become "super-righteous-saint", will God heal him???

My mommy heart cries as I look at this awesome kid playing legos beside me.

Sorry, I needed to vent...now I need to turn back to God and trust...(I should have done that first)

9 comments:

The Rigelsky Family said...

D WILL BE HEALED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Greg C said...

Now I don't know your total situation but let me tell you about my youngest son and maybe you can apply some of it. When we went to put him in Kindergarten, they told us that he was "slow" because he wouldn't take a test and we had to find another school that would give him a try. He simply didn't want to take the test. Then they didn't want to let him graduate from kindergarten because he refused to color. He could add, subtract multiply and devide, He was bored. Then they told us in first grade that he needed medication because he daydreamed all day. Finally one of his teachers said wait a minute, he is just smart and bored. We found that the more we challenged him the better he did. He is now in 6th grade and at the top of his class. He plays two musical instruments and wants to learn a third. He loves to watch the history channel and can tell you more than most adults. Wouldn't it have been a shame if we had put him back in either of those classes or put him on medication? Just something to think about.

Kelly said...

Second Opinion!! Go see a second doctor. Maybe someone willing to pull him off his meds and start all over. Alot can happen in 4 years. He could be better/different now.

I'm sorry you're dealing with all of this. I can't imagine how tough it is. God is with you.

Sandy @ The Scoop on Balance said...

Hello!

I just stopped by to thank you for your kind comment on my blog. It's good to know the devo touched people.

I also read through a few of your posts and wanted to agree with Chatty Kelly that you should get a second opinion on your son. I'm sorry you are having so many issues. There is really nothing worse for a mother than to deal with her baby in pain/turmoil. I would also go to a nutritionist, if you haven't already, and see if there are any dietary changes you can make in lieu of the meds. I know several people who took their kids off gluten and had amazing results. There may be food alergies involved. Hang in there, Mom!

And finally, I totally understand the "comment" thing you talked about. The inner struggle with followers and subscriptions and all of that. I've considered removing the "follow me" gadget from my sidebar for the same reason. It's too easy to put your worth and value into that. I still haven't, but I'm on the verge. :)

Hope to chat again soon, friend!

Sandy

Edie said...

Hey Heaven, Sorry I didn't make it over here earlier. I'm with the others, go get a 2nd opinion. That sure sounds like a lot of medication for a young boy.

I will call on the Great Physician with you.

Holly Swaney said...

Wow... that was my first thought also, was to get a second opinion. My personal opinion is that all doctors are pill pushers these days. They put me on trazodone last summer and I was still having trouble sleeping so I started taking sleep aids or tylenol pm at the same time... and then my dr. said he wanted me tested for ADD and then the dr. I was seeing up here in La Crosse said no and the last thing I want is to be put on more meds. They ran all kinds of tests and blood and said everything was fine, then they were concerned about diabetes, the dr. here said its something to be concerned about and my dr. back home says it's nothing to worry about... I can understand kinda what you're going through.
Is he seeing someone in pediatrics or just a family doctor? Not that it would make a difference, but it may.

Heaven said...

He's seeing our family practice doctor, but I think I will switch him back to a pediatrician. He sees a psychiatrist for the ADHD and other stuff. But yes, I am definitely going to switch. Thank you all for your prayers

My ADHD Me said...

OK, here is the opinion from the poster child of ADHD. YES, I have extreme ADHD. I take the highest dose allowed by the FDA and it is only enough to keep me off the ceiling (picture the cat that is so jumpy on tv that he jumps up and sticks his claws in the ceiling. I have been on SO many meds. I have had 2 doctors quit or retired...hhmmm...was it me? haha. I am on my 3rd now. The first doc helped, the second doctor thought the first doc was crazy on having me on such a dangerous amount and took me off of about 50%...I was a basket case...more than usual. The doc I see now has me back on the same as the first one did.

It isn't a magic cure and I struggle every single day to focus, not get sidetracked and even have difficulty sometimes carrying on conversations as I tend to blurt out the first thing that comes to mind (picture Turets (spelling?) Syndrome of the mouth.

I do know that this is the best it is going to get with me. I wasn't diagnosed as a child...was anyone back then? School was AWFUL and I struggled daily until I finally just didn't care any more. The longer you go without treatment...the harder it is to get it under control.

NOW, regarding children. My son is in 7th grade. Ever since 2nd grade his teachers have told me he has ADHD or ADD. I took him to a therapist and he agreed.l I had already known he did as I live the symptoms and he is his mother's boy, no doubt. HOWEVER, it is possible to get thru it without medicine and I was determined to do that. We struggled year after year. Homework took hours and ended up with me yelling and him crying, more often than not. A 15 min project would take 2 hours. At school, the teachers said that even though he was "ther" it was like he really wasn't. Not to mention it was the blind leading the blind at our house.

FINALLY, this year I gave in and took him to the doc and had him put on Straterra. It is a NON-stimulant med for ADHD. The change was truly miraculous. Every one of his teachers commented on it. UNFORTUNATELY, It gave him stomach aches. The doc said that was a normal side effect and usually went away after a few weeks. But after 6 weeks it was still there, so just yesterday I took him back and had him put on a lower dose. Am praying that works just as well. I want him to do well but I don't want a zombie (he is full of life and that is one of the wonderful parts of his personality). Also, people with ADHD tend to be creative and full of life (see, it isn't ALL bad).

Bottom line, his doctor was VERY concerned about putting him on anything else. I know he would never consider giving him any more meds unless he was 100% sure that they were absolutely necessary.

BOTTOM LINE (ok, 2nd bottom line) (see I always get here eventually) GET A SECOND OPINION!! From A DIFFERENT PRACTICE, if possible. Doctors in the same practice tend to stick together. ALSO, get him a therapist to figure out what is going on with those other issues.

I ADORE my kids and it is obvious you do to....nevertheless...they WILL talk to a therapist better than they talk to you. I can almost guarantee it. Also, don't get discouraged as the therapist thing takes a while and isn't cheap. It was frustrating for me to pay all that money and then they would go off and play a board game. Over time,however, the man won my son's trust..they chatted and it helped.

PLEASE PLEASE get a second opinion. You owe it not only to your son....but also to yourself. NOTHING is harder on a mom than when her child is hurting.

I hope this helped. Be patient as this will take a while but it will be worth it!

From someone who has been there and sometimes still is,
Mary
(aka MyADHDMe!)

P.S. Also, try to stick to regular routines at home. Stability, schedules and routines are VERY helpful for ADHD children....I am horrible about that but am trying.

My ADHD Me said...

P.S. A phyciatrist is helpful for medicine distribution but they are really just medicine doctors to control his meds.

They aren't therapists. They will not spend the time with your son to really get to know them. it isn't their job and most of them will even tell you that.

He should have already recommended a therapist as most of them do. Like I said this is going to take a while and even with co-payments, it isn't cheap.

HANG IN THERE!!

Who am I Lord?

1 Chronicles 17:16 Then  King David went in and sat before the Lord, and he said: "Who am I, Lord God, and what is my family, that you...